First Day of Preschool

Clark's first day of preschool was February 24th. I took my camera. I was ready for the great "First Day" shot. I clicked the shutter. And my camera battery died before the shutter could open. I was seriously bummed. Anyway, these pictures of of Clark's second day.

His teacher, who is also the director of the preschool, told me yesterday that he is very well behaved and smart. She also gave me a copy of Jenny McCarthy's book, Mother Warriors and suggested that we get Clark tested for Autism Spectrum Disorders.

Many of you know that we had Clark tested last fall to see where he was developmentally. At that time, he was said to "be in the normal range." His new teacher explained to me that the numbers the school system uses to evaluate children are based on legislation from the 1970's, and are completely inadequate, especially considering the rise of childhood autism.

Clark's preschool teacher, Heidi Harlow of Harmony Farm, told me the day we toured her preschool that she could tell the moment we walked through the door that "something was up with Clark." She recommended a developmental pediatrician and told me that she would be happy to help me to navigate the waters of testing, and battling the school system on Clark's behalf. And that was only having known her for about 20 minutes. She is very passionate about her work, but she is especially passionate about Autism. Then, on Clark's second day, after she handed me the book, she said, "Well, if this is the worst, then you've got it really good!" She was complimenting Clark and trying to remind me that he is certainly very high-functioning. We could have it a lot worse.

We have a lot to be thankful for.

I'm almost finished with the book, but it has taken me three weeks to get through it. I open it and read, and then I cry. It's overwhelming emotionally and daunting in terms of potential therapies.

And then there are the accompanying questions of doubt in my mind. Will Clark continue to improve? Will Clark regress? Will he ever be able to go to school without an aid? Will he have "normal" social relationships? Will he have good friends? Will high school be hell? Will he serve a mission? Will he fall in love? Will he get married? Will he have a family? I feel paralyzed.

And then Sunday night, Jose and I watched a movie that has helped me to put things into perspective. It's an HBO film called Temple Grandin, and it's a true story about a woman of the same name. She was diagnosed with Autism in the 1950's, back when it was typically called infantile schizophrenia, and children were generally institutionalized for having it.

Watching this film is an amazing visual experience. You see how Temple sees. You feel how Temple feels. And she unlocks the door to understanding Autism.

In real life, Temple Grandin has done just that. She is now in her 60's and she has earned a B.S. a Master's and a PhD. Her career in livestock behavior and animal handling is unquestionably remarkable. She has published at least 6 books on Autism. Her life, more than anything else for me, is a testimony of what is possible, no matter what. Against all odds.

Hope for my baby.

Clark is an amazing, sweet little boy. He is truly the sunshine in my life. I am so blessed to be his mother.

Comments

JS said…
Kim! When i staryed reading this, i was going to recommend Temple Grandin to you! How inspiring and enlightening! That is so hard to go through! My sister in law is going through the same thing. There are list of unknowns about autism, but I had many high functioning students with autism. They were some of my favorite students! Two just emailed me and they are graduating top of their class and going to great schools. I feel like anything is possible. Love you!
Rachel said…
Wow, Kim. I didn't know you were going through any of this. You are such a good mommy and Clark is so fortunate to have you, and you him! I'm sure there are many challenging moments. It sounds like you are doing all the right things for him though. Just keep swimming, swimming, swimming....You are amazing!
Tiffany said…
Kim! The great thing is that you are educating yourself right now. It sounds like although he may be on the spectrum he is at the high end of functioning and it probably isn't what is considered Autism but some other type of processing disorder (on the spectrum) I have also heard that there is remarkable therepies that include diet changes like cutting out gluten. The great thing is that he can get help now! That will change his prognosis dramatically! My thoughts and prayers are with you! You are such a wonderful mom with such amazing ability! Ok I am not telling you anything you don't know. Just remember Philippians 4:13 "I can do all things through Christ who strengthens me."
Michelle said…
I love reading your posts Kim, even though they always make me cry. :) We are always thinking of you guys and can't wait to spend some time with the Aguilars in the next few months!
Mama Peck said…
Kim, keep reading and praying. There is a lot of information out there and everyone seems to have strong opinions one way or another and will be eager to 'help' you do things their way. Remember that Heavenly Father is really the only one who knows what is best for Clark- trust your instincts and listen carefully for answers from Him. What works and is right for one child is not necessarily the best for another. Our daughter is going thru the same thing with her son so I understand the challenges. Hang in there, Kiddo. In the end, I'm convinced the very best thing you can do for any child is exactly what you do best.. LOVE him. :) hugs!
Tobi said…
K, now I'm crying. You are such a sweet and caring mama. Clark is such an amazing little boy and I love him so dearly. We'll continue to pray for each of you. xoxo

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